Considering the copay is 20%, probably most of it. If not, they’re sticking the insured with a far higher percentage of the cost than agreed on. Granted, I also get copay assistance so I don’t actually pay $100,000 per month. But Strensiq really does cost millions per year per patient at this time.
So I’ve been on both sides of the stethoscope and total charges have little bearing on what insurance pays. If they bill you a million and your copay is 100k, (private, not Medicare) insurance is probably paying 50k.
no thanks, i’ll leave making lies up to all y’all
Orphan drugs cost millions per patient, sorry your ignorant, but this is reality, y’all:
Skyclarys (omaveloxolone) has a wholesale list price of approximately $370,000 to $399,180 per year
Zolgensma has a US list price of about $2.1 million for a single, one-time treatment.
Lenmeldy – $4.25 million (Metachromatic leukodystrophy)
Kebilidi – $3.95 million (AADC deficiency)
Hemgenix – $3.5 million (Hemophilia B)
Elevidys – $3.2 million (Duchenne muscular dystrophy)
Lyfgenia – $3.1 million (Sickle cell disease)
Skysona – $3.0 million (X-linked adrenoleukodystrophy)Zynteglo – $2.8 million (Transfusion-dependent beta thalassemia)
– ~$1.51M to $1.56 million per year (Generalized lipodystrophy)
Danyelza – ~$1.39M to $1.44 million per year (High-risk neuroblastoma)
Zokinvy – ~$1.30M to $1.44 million per year (Hutchinson-Gilford Progeria Syndrome)
Miplyffa – ~$1.30 million per year (Niemann-Pick disease type C)
Kimmtrak – ~$1.17 million per year (Metastatic uveal melanoma)
Folotyn – ~$1.01 million per year (Peripheral T-cell lymphoma)
Demser – ~$960k to $1.20 million per year (Pheochromocytoma)
Brineura – ~$916k to $1.02 million per year (CLN2 Batten disease)
Spinraza – ~$900,000 for the first year, then ~$450,000 annually after (Spinal muscular atrophy)
Blincyto – ~$905,000 per year (Acute lymphoblastic leukemia)Ravicti – ~$695,970 per year (Urea cycle disorders)
I am on a drug that the pharmaceutical bills insurance $500,000 per month for called Strensiq. This is not a lie, I have the EOBs.
and what does insurance actually pay from that 500k?
i have more medical debt than probably all of you. i was running up millions of dollars worth of charges every month.
the insurance did not pay millions of dollars every month.
Considering the copay is 20%, probably most of it. If not, they’re sticking the insured with a far higher percentage of the cost than agreed on. Granted, I also get copay assistance so I don’t actually pay $100,000 per month. But Strensiq really does cost millions per year per patient at this time.
So I’ve been on both sides of the stethoscope and total charges have little bearing on what insurance pays. If they bill you a million and your copay is 100k, (private, not Medicare) insurance is probably paying 50k.
Making up lies ya’ll?